Femoral Facial Syndrome
Femoral Facial Syndrome is a rare disorder characterized by underdeveloped thigh bones (femurs) and unusual facial characteristics. It presents with a very broad range and variety of symptoms. Namine’s diagnosis of this disorder includes her Caudal Regression Syndrome, Pierre Robin Sequence, and Double Inlet Left Ventricle Heart Defect.
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A day of resting
Two days after breaking her leg, Namine is starting to feel better.
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Broken leg
Namine broke her leg over the weekend.
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Grandpa Goes to Dance
Grandpa here. Last night I had the pleasure of accompanying Namine to dance class.
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Tournament disappointment
Today was supposed to be Namine’s first basketball tournament, but she didn’t get to play.
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Stretches and dancing
Dance is sometimes difficult, but that has never kept Namine from giving her best effort.
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What might have been
Namine is a talkative girl, but she tends to keep her deepest thoughts to herself. Every once in a while, though, she opens up to us.
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Sharks and Minnows
I’m pretty certain Namine’s favorite part of Saturday’s basketball practice is playing Sharks and Minnows.
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Up down, up down
Keeping up with Namine’s dance classmates is hard work.
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Kvell
I subscribe to some writing prompt newsletters. This morning’s contained an unusual directive. “You must use this word, in whatever context you like, in today’s prompt: kvell.”
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44 seconds in
Namine is working hard at learning her recital dance.
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Back to basketball
Namine had been sick for a while (’tis the season), but she was finally feeling well enough again to attend basketball practice.
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Jazz recital practice
Namine started learning the dance for her jazz recital.