Caudal Regression Syndrome
Sacral Agenesis, Lumbosacral Agenesis, and Caudal Regression Syndrome are three terms that are often used interchangeably. Sacral Agenesis refers to a condition in which the sacrum (the lowest portion of the spine that forms the joint with the hips) fails to form (agenesis) during fetal development. Lumbosacral Agenesis describes a more extensive form of this condition in which one or more of the lumbar vertebrae may also be missing. Caudal Regression Syndrome refers to the same condition — the missing portions of the spine (the caudal regression) — and the syndrome of conditions that often accompany it.
-
Pain managed, time to break free!
Namine was given the all-clear to go home! We just had to wait for our discharge papers.
-
Foot laceration pain management
With the larger threat of infection all but removed, the focus now is on pain management.
-
Foot laceration complications
The pain in Namine’s foot from her fall was so out of control that we ended going back to the ER.
-
My tipped wheelchair
My dad wrote about when I tipped my wheelchair. This is what happened, from my point of view.
-
Tipped wheelchair and foot laceration
Namine’s wheelchair fell on top of her. Fortunately, she did not break any bones. She did suffer a pretty nasty cut on her foot.
-
Zipper shoes
Namine has settled on a pair of shoes she likes and likes to wear.
-
Leg pain scare
Namine’s leg was caught in the sliding door of the van. Fortunately, nothing is broken.
-
Teaching herself to swim
Namine taught herself to swim at Disney World.
-
Freshman year orientation
Who told our daughter she could grow up?
-
New orthopedic doctor
We met Namine’s new ortho doctor today.
-
Virtual speech at the medical college
Jessica, Namine, and I were asked to speak once again to the Medical College of Wisconsin about equipment, accessibility, and patient support.
-
Road trip to radiology
We had to go to the hospital to X-ray Namine’s leg.