Caudal Regression Syndrome
Sacral Agenesis, Lumbosacral Agenesis, and Caudal Regression Syndrome are three terms that are often used interchangeably. Sacral Agenesis refers to a condition in which the sacrum (the lowest portion of the spine that forms the joint with the hips) fails to form (agenesis) during fetal development. Lumbosacral Agenesis describes a more extensive form of this condition in which one or more of the lumbar vertebrae may also be missing. Caudal Regression Syndrome refers to the same condition — the missing portions of the spine (the caudal regression) — and the syndrome of conditions that often accompany it.
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Foot laceration complications
The pain in Namine’s foot from her fall was so out of control that we ended going back to the ER.
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My tipped wheelchair
My dad wrote about when I tipped my wheelchair. This is what happened, from my point of view.
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Tipped wheelchair and foot laceration
Namine’s wheelchair fell on top of her. Fortunately, she did not break any bones. She did suffer a pretty nasty cut on her foot.
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Zipper shoes
Namine has settled on a pair of shoes she likes and likes to wear.
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Leg pain scare
Namine’s leg was caught in the sliding door of the van. Fortunately, nothing is broken.
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Teaching herself to swim
Namine taught herself to swim at Disney World.
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Freshman year orientation
Who told our daughter she could grow up?
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New orthopedic doctor
We met Namine’s new ortho doctor today.
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Virtual speech at the medical college
Jessica, Namine, and I were asked to speak once again to the Medical College of Wisconsin about equipment, accessibility, and patient support.
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Road trip to radiology
We had to go to the hospital to X-ray Namine’s leg.
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World Clubfoot Day
Today is World Clubfoot Day, so I’d like to take a moment to discuss how it pertains to Namine.
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Wheelchair cushion decision
Namine has reached a decision about her wheelchair cushions, but it wasn’t an easy one.