cough
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Stoma care: using Mepilex instead of gauze
The question of keeping Namine’s tracheostomy stoma covered was raised in my mind. Since decannulation, we’ve kept it covered with gauze. It seems like she’s coughing when she has the gauze on, but when we take it off, she doesn’t cough as much or at all. So I called the ENT department at Children’s Hospital…
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Sickness and surgery
Last night Namine didn’t need any oxygen. It seems like with this cough and ear infection, she’s been kind of on-again-off-again needing the oxygen. But I put the pulseox on her after she was asleep, and she was satting at 88. I admit I was a little worried, because during her nap, she was dipping…
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On growth and caudal regression
Namine seems to be doing well. She’s happy, active, and she’s keeping up with her usual appetite.
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Namine is sick again
Last night we saw some crusties around Namine’s right ear. No active drainage, but crusties (Give me a break. what word would you use?) are enough of an indication of an infection. So Jessica and my mom took Namine to see her pediatrician this morning.
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A good night
Last night, Namine slept through her third trach-less, no-help-from-oxygen night, ever.
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Sickness, scarfing, and scooting, oh my
Namine is doing better and better every day, but she’s not quite 100% yet. She still needs oxygen while she sleeps, and she’s still coughing a little bit during the day. But she’s done with her Tobi meds and oral antibiotic, she’s coughing less, and what little she is coughing, she’s getting mucus out of…
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Good news and bad
The good news, of course, is that Namine came home from the hospital yesterday.
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Still in the hospital
Namine will be in the hospital for at least tonight, maybe tomorrow night as well. She still has an infection, and she’s still coughing up mucus, though admittedly it’s not green mucus anymore. Her disposition has improved quite a bit, though she’s not quite her usual lively (and hungry) self. We’ll get there, though.
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Namine’s stoma infection
Namine is in the hospital again. Following on the heels of last night’s post (actually, it was probably early morning) is the news that Jessica and my mom took her into the ER this morning.
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Respiratory distress
We had our first trach-less scare, tonight. I have talked before about how Namine has always had intestinal troubles; well, tonight she was a whole lot of pain, trying to push something out. Couple that with dealing with her trach being gone, and you have a recipe for trouble. She’s sleeping soundly, if not a…
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Decannulation is a go
As Jessica posted earlier, Namine passed her sleep study. This means one thing: decannulation!
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Improvement, now with ketchup
Namine seems to be getting a little better, now that she’s on the Tobi nebulizer and a steroid to help keep her wheezing down. She’s only coughed once since I put her to bed, and she didn’t even need much suctioning. Between finishing the breather and putting her to bed, though, she coughed up quite…