Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Riding her bike
We broke out Namine’s bike today to see if she could use a little more easily. I think it went well.
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Reading and spelling
Since I’m not home during the day, I don’t always get to see Namine’s progress firsthand. When I do, though, it’s awesome.
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Roadblocks
Since we have Wii Fit board, Namine’s therapist recommended we try her out on some of its balance games. There were mixed results.
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Making a bulletin board
Today was my family picnic, but we didn’t go. Jessica was already sick, and with Namine going to Urgent Care last night, we thought it best to stay home. But that didn’t mean we were just going to mope around.
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Trip to Urgent Care
Namine complained tonight of pain when she went to the bathroom. Fearing a UTI, we went to the Urgent Care.
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Her very own sink
We set up a sink for Namine outside the bathroom.
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Misheard lyrics
This morning, after I got Namine her medicine, she asked for some water. “No problem,” I said, getting a glass from the cupboard.
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Another lost tooth
One of Namine’s bottom teeth fell out.
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Music lovers
I am the odd man out in my family. They’re nearly all musicians — my mom and dad have education in music, my sister too, and my brother at least has a good singing voice — but I just love music. And as far as Namine’s upbringing goes, I think that’s enough.
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Playing Rock Band
The other day I got a text from my mom: “Saw this at a rummage, $25. Interested?”
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School and a fire alarm
When I got home from work yesterday, I already had a pounding headache. Jessica and Namine were still doing school. Namine had only one more thing to do before her day was done, but she was being difficult. With my head pounding, I took over school for Jessica so she could have a break.
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A smelly lunch
Yesterday after therapy, I had lunch with Jessica and Namine. We unintentionally went to a smelly restaurant.