Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Basketball and dance
Namine had a great time at basketball practice and ballet class.
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Heart monitor results
We have the results from Namine’s heart monitor, and they’re mostly good.
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Random silliness
I’ll let Jessica tell you about this one.
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Back to piano
An out-of-practice Namine returns to her piano lessons.
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Basketball again
Namine had a great time at her first practice since she broke her wrist.
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Hoopalooza
Namine was finally able to participate in a tournament!
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Bone density scan
Namine had an appointment this morning to have a bone density scan. We don’t know any more now than we did prior.
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Tour de Force
Namine attended her first week of ballet with Tour de Force.
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Informed decisions
There was a discussion on one of the Facebook groups I belong to on how and when to educate one’s child on surgery. I responded there with a simplified version of what follows, but I have more to say (as I usually do).
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Heart monitor
Namine saw her cardiologist for a heart checkup.
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We’re home!
I’m happy to say that we arrived safely at home without incident.
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Halfway home
To paraphrase Kermit the Frog, only one more sleep ’til home!