Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Haircut and donation
It’s been a long time coming, but Namine got a haircut today.
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Piano recital
Namine played in her Spring piano recital.
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Cleft palate clinic
Namine saw several doctors in a morning-long cleft palate clinic appointment.
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Memorial Day weekend
We visited my aunt for Memorial Day weekend. We had a lot of fun!
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Brewers game
We went to a baseball game.
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Madison
We spent the day in Madison, so we made a field trip out of it.
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Terrarium
Namine built a terrarium, and it is thriving nicely.
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Basketball with the new wheelchair
Namine got to take her brand new, custom-built wheelchair for a spin at basketball practice.
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Tour de Force recital
Namine and the rest of her dance class performed in their very own recital.
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Join us for Al’s Run
I’m happy to announce that we have once again formed Team Namine for Briggs & Al’s Run.
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TMJ4 on Tour de Force
A local news station did a report on how dance helps kids with disabilities.
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New baseball season
A new season of baseball has started!