Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Creation Camp at Zachariah’s Acres
We spent a couple hours up at Zachariah’s Acres. The weather was a little brisk, but we still had fun. ♿
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A busy sixth grader
With the combination of homeschool classes, online classes, and co-op classes, Namine is one busy kid.
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Bike fitting and measuring
We met with one of the mechanics working on Namine’s new adaptive bike. It’s almost done!
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Al’s Run
We ran, walked, and wheeled in Briggs & Al’s Run in support of Children’s Hospital of Wisconsin!
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Cardiology checkup
Namine had a routine cardiology checkup today. She is doing well, but we learned of a potential future complication.
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Picking up Al’s Run shirts
The new design for our Team Namine shirts came out quite nicely!
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Labor Day weekend fun
We had a lot of fun over the long weekend!
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Al’s Run t-shirt design
I’m happy to reveal our design for this year’s Al’s Run shirts!
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Second school orientation
Namine attended her homeschool co-op’s orientation. She met with teachers, auditioned for a play, and more!
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Birthday escape room
We escaped the Titanic with my brother and sister-in-law!
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New van
We got a new car! We’re pretty excited about how accessible it is for Namine.
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Zoo a la Carte
We (Grandma and Grandpa) recently had the pleasure of taking Namine to Milwaukee à la Carte at the Zoo, and predictably, she had a great time. Local restaurants set up booths around the zoo where food could be purchased, so that in addition to seeing the animals, we enjoyed some tasty treats.