Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Bookworm Gardens
We spent the afternoon exploring a literature-themed botanic garden!
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Heart echo
Namine had her yearly echocardiogram and heart checkup.
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Overturned bike
Namine found out the hard way not to take sharp turns with her bike.
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Drive through party
Namine celebrated her last day at her homeschool co-op by giving her teachers homemade cards.
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Therapy benches
Namine’s new therapy benches have finally arrived! ♿
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Video doctor appointment
Namine had her first virtual checkup.
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Rehearsing for The Music Man Jr.
Namine’s school is going ahead with their production of Music Man, Jr.
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Accessible vacuum
We got a vacuum that makes doing chores a little easier for Namine. ♿
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Trying on new AFOs
Namine received her new foot braces today.
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Easter at home
Happy Easter from the Eiche family! ✝️🙌
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Online dance classes
The Milwaukee Ballet’s Tour de Force dance class is back — online!
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Outgrown AFOs
Doctor and therapy appointments don’t stop, even in a quarantine.