Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Climbing into the wheelchair
Namine’s physical therapist has been working with her lately on climbing into her wheelchair. It’s been slow going, and we’re not sure why. We have some theories, though.
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Junabee Bajones
A while ago, Namine and I started reading chapter books. We’ve finished a book on Helen Keller, which she enjoyed very much, and the first in the Junie B. Jones series of books. Namine calls her “Junabee Bajones.”
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Trip to Penzey’s
Yesterday we went to Penzey’s to get some spices.
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Donny says vacuum!
When Jessica makes dinner, it’s something made from scratch – just short of killing the cow in the back yard, anyway. When I make dinner, it’s frozen, and more often than not made of cheese and pizza sauce. Tonight, then, was a rarity. I, being in charge of dinner, helped Namine make frozen chicken pot…
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Three’s company
As a parent, you find that some little girls play well together. And some… well, not so much.
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Making biscuits
We were going to make biscuits and gravy yesterday, but I came down with the flu. Since I’m feeling a little better today – by that I mean I felt that I could have more than Jello and 7-Up – we made them tonight.
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Playing with Legos
Namine is playing on the floor with her Legos. She stood several guys around her. “We are gathered here today because I am awesome!”
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Diapers and potty training
Potty training is stressful enough for both parent and child. It’s made even more stressful by not knowing if your child is able to tell when they need to go, or if they can hold it at all.
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Sick again/still
Snuggling with my sick kiddo. This virus is nasty.
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Princess Legos
We had planned on going to the mall over the weekend. For obvious reasons, we didn’t go on Saturday – Namine was still sick, and even though she was once again eating real food, we didn’t want to chance taking her out.
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Namine jamming to Rise Against
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Sick
I’ve lost count of how many times Namine has thrown up today. It was supposed to be a fairly normal appointment day, with Jessica taking her mom to get a blood draw, then one for herself and for Namine. How strange it must seem that that constitutes “normal” for us, but the day ended up…