It wasn’t Namine’s first time back to therapy since her most recent heart surgery, of course. But it was her first time walking. Not just doing more at home, climbing on things – although no one was more thrilled than her when she got the green light to climb again – but really, truly working hard. And she did amazingly well.
I got home from work to hear Namine making kung fu noises. Turns out she found one of my games on the PS3’s hard drive – Invincible Tiger.
Actually, just one tent. Geddit?
Jessica showed me something interesting last night. Namine had drawn her hand on the chalkboard. After doing so, she filled in some details, including the crease of skin between the palm and fingers, and the blood in her veins. I find this fascinating.
Today Namine was watching The Three Musketeers (the Mickey Mouse version, not the wire-fu version) and she asked, “Why are all the animal boys and girls dressed like people?” It was not a question we were prepared for coming from a five year old.
I only heard about this when a friend tagged me in a Facebook post about this. He works at Froedtert, but thankfully he was off-campus when it happened. As for us, we didn’t have any appointments at the hospital today, so we were nowhere near.
Jessica decided that we should name Namine’s palatal prosthetic. She and Namine settled on “Pat.” I don’t know. My girls are weird sometimes. It’s up to me to establish normalcy in this family. My cross to bear, I guess.
My sister wrote this essay, republished here with her permission. My role model isn’t someone famous or someone with many years on me. Truth be told, the person I look up to most is someone less than three feet tall. My niece, Namine, is five years old, but she has gone through more life than some 50-year-olds. She’s had three heart surgeries, a cleft palate surgery, jaw distractors, and two foot surgeries, and those are just the big surgeries. Overall, outpatient procedures included, she’s had over two dozen surgeries. And even through all that, she is the happiest little girl I have ever met. She has more cause than most to be cranky all the time, and she has never […]