October 2013
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It’s hard with only two channels
Sometimes it’s a blessing in disguise to have such petty things to complain about.
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The road to recovery
Yesterday it was just me and Namine.
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Raising awareness for Pierre Robin Sequence
It’s been a while since I talked about anything other than staying in the hospital. We’ve been pretty busy, especially with the complications that have arisen from Namine’s heart surgery and all that entails.
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Going home soon
The plan for Namine is, as the doctors have outlined it, for Namine to go home on Monday (assuming she doesn’t come down with anything else over the weekend, that is). She will go home on vancomycin – the IV antibiotic – and will remain on it for at least another week, if not two.
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Poor bird
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Breathing easy
It’s twenty past four in the morning, and I finally feel that Namine is sleeping easily enough for me to go to bed, too. She fell asleep easily enough, but her breathing has been ragged. I suspect she just hit REM.
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On the mend
This morning a doctor came to change the bandage on Namine’s chest. As you might imagine, she was not thrilled. But when it was done, she was happy it was gone.
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Good news
Namine’s surgeon just came out to tell us they’ve finished. They ended up only needing to use sutures, and not staples like the PA had originally told us. The sutures are interrupted, though, similar to how the staples would be, so that the wound can breathe a little and still heal from the inside out.…
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Forevvvver
I am going to die waiting for my sandwich in the hospital deli. At least I got a free cookie.
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Full speed ahead
The CV surgical team met this morning to decide on what to do with Namine – whether to try another wound vac or just close her chest. And the final decision has come down that they’re going to close her up.
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No rest tonight
Everything seemed calm at 12:30. Namine was resting peacefully; her wound vac chugging away silently, slowly doing its job; no alarms alarmed. I felt safe that I, too, could rest. I was wrong.
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Done and done
Namine’s operating cardiac surgeon just came out to tell us that they’ve finished. And good news all around.