September 2013

  • At the cardiology clinic

    At the cardiology clinic

    As you can see, Namine was super cheerful today. She knew what was in store – an x-ray, a blood draw, and then on to see the cardiologist – but nothing could sour her mood. No, not even the blood draw.

  • Blood on the sheets

    Every morning, before I leave for work, I move Namine from her bed to “the big bed” (her name for Jessica’s and my bed). This morning, as I picked her up, I noticed two things: blood on both her bed sheet and her nightgown.

  • CSS animation

    I had an idea to create an animation of an envelope opening, and a piece of paper being removed and unfolded. This is the result.

  • I blew Namine a kiss.

    I blew Namine a kiss.

    “I got it, Daddy. I’ll put it here, right next to my heart.”

  • Trip to the hospital

    Remember Namine’s hematoma on her chest from last night? Today Jessica took Namine to the hospital to get it checked out.

  • Namine singing

    Namine singing

    A couple videos of Namine singing.

  • Late-night scare

    Last night, when I was getting Namine ready for bed, I noticed something: the scab over the incision on her chest was half gone. What’s more, she had a nickel-sized bruise. It hadn’t been there that morning, of that I was sure. We immediately got on the phone with the hospital’s special needs and cardiology…

  • Homemade donuts

    Homemade donuts

    Don’t they look good? I donut know which one I liked best. (And I don’t apologize for the bad pun.) We won a little donut maker at the KidReach picnic, and yesterday Jessica and Namine made some.

  • Pizza time

    Pizza time

    Ever since Namine’s physical therapist came over last week, she (Namine, not the PT) has been craving pizza. Normally this wouldn’t be an issue, since we all love to eat pizza. (Seriously, it’s probably our favorite food.) But Namine has been on a mandatory low-fat diet since the Fontan, and do you know how hard…

  • Garbage paper

    “Moo-ooom! There’s garbage paper all over my new coloring book!” “That’s shrink wrap. Let me get that off.” “Oh. Okay. Thanks, Mommy!”

  • Scary quote of the day

    Despite the improvement in operative survival, morbidity associated with the Fontan operation remains significant.

  • Pizza Mania