·  Normal is a dryer setting.

September 2013

Bowling and frozen yogurt

Today we took Namine bowling. We’ve played with her bowling set at Aunt CR’s house before, but this was her first time at a bowling alley. Fortunately for us, the alley had a wheelchair ramp and a special slide to make it easy for someone in a wheelchair to send the ball down the lane.

Namine’s shoulder

We heard from one of Namine’s doctors yesterday. He called to inform us a bit about her right shoulder, which we recently discovered is not bad because of multiple line placements, but rather because of a birth defect.

Steampunk foxes

Before dinner, Namine asked me how to draw a fox. I don’t really draw realistic things, like, at all, so I quick sketched out what seems to be a cat with a fox’s tail. No matter; it was good enough for Namine, and she sketched out a fox of her own. I thought it was pretty good.

What matters most

Yesterday we found out that Namine’s most recent x-ray shows evidence of a congenital defect in her right shoulder. This was discovered by a tech, not a doctor, which surprises me. Of the thousands (yes, I have no doubt the number is in the thousands) of x-rays Namine has had done, this has not once been found until now, more than five years after her birth.

Despite the fear

Since Namine’s chest incision from her heart surgery is taking longer to close than originally anticipated, she had to keep it covered with gauze and some tape over the weekend. She was none too happy about it, either, especially because her skin is very sensitive to adhesives.