September 2010
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Namine’s trach removal is tomorrow
I don’t think I can get any more straightforward than that.
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Appointment day
Namine had an appointment today, a checkup visit with Dr. Denny, her plastic surgeon. (Why are they called plastic surgeons? They operate on people.) Just to make sure her jaw is doing okay, and all that lovely stuff. And tomorrow’s the big day! We check in at the hospital tomorrow at 10.
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Music class
My mom and dad picked Namine up to take her to some kind of music class this morning. I’ll update everybody on how it went later. In the meantime, Jess, her sister Chyral, and I are going to pick up the cake and go to the baby shower. We’ll all meet there and then I…
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Namine’s fever is going down
I took Namine’s temp tonight before putting her to bed, and it was 99. That’s down from 100, so we’re getting there. She’s chewing on damn near everything, and this was even after dinner, so I’m pretty sure her teeth are bothering her. I know her two-year molars are coming in, so that would pretty…
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Grandpa coming home
Just a quick one, kids. My grandpa is coming home from the hospital today. My mom says he’s doing well. I’ll post more when I know more.
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Fever
Cross your fingers that this doesn’t get worse, or better yet, that it passes completely in less than 5 days. Because that’s how long Namine has until her decannulation appointment, and she has a fever. It’s not terribly bad, but it’s still worrisome. She’s still in high spirits, but that’s about par for her. Half…
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Countdown to decannulation
Well, kids, we’re in the final week before Namine gets rid of her trach.
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Where are the pictures?
When I made Namine’s picture page, I had a specific categorization in mind. It made sense to me to make it a child page of Namine’s about page. They were both concerning Namine, after all, and I thought her about page was more important than her pictures page. But I recently had two people complain…
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Tribute to Namine tonight
Tonight my friend and coworker Derek is performing with his band at the House of Guinness in Waukesha, in tribute to Namine.
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Special needs week
Some thoughts on recent special needs-related Facebook posts.
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Procedure recovery periods
In answer to the question of recovery periods, Namine will be in the hospital for up to 3 days after they remove the trach. A week or so later, her stoma (tracheostomy hole in her throat) will be closed, end of story. The foot surgery, on the other hand, has a recovery period of 6-8…