Namine is sick again

Last night we saw some crusties around Namine’s right ear. No active drainage, but crusties (Give me a break. what word would you use?) are enough of an indication of an infection. So Jessica and my mom took Namine to see her pediatrician this morning.

Brought to you by the letter F

An example of use is: “The effing state is cutting off our nursing.” That’s right, kids, since Namine is now without a trach (believe me, not really complaining), the state has decreed that in roughly two weeks’ time, we don’t get any more nursing. At least they gave us some advance notice. (Yeah, two and a half weeks.)

A good night

Last night, Namine slept through her third trachless, no-help-from-oxygen night, ever. The first night was in the hospital, the night after the day of decannulation. The second was the following night, at home. After that, she got sick. She spent time in the hospital again, because she was sick. She came home, she got better, and now I can really say she’s doing better.

Sickness, scarfing, and scooting, oh my

Namine is doing better and better every day, but she’s not quite 100% yet. She still needs oxygen while she sleeps, and she’s still coughing a little bit during the day. But she’s done with her Tobi meds and oral antibiotic, she’s coughing less, and what little she is coughing, she’s getting mucus out of her stoma. The stoma itself, in its turn, is getting smaller. Not healed yet, but like I say, we’ll get there. A two-year-old open wound is not going to close overnight.

Equipment failure

At least, equipment malfunction. After last night, I’m convinced that’s what happened. Namine slept through the night, oxygen mask strapped securely over her face. The pulseox, on the other hand, beeped, booped, and otherwise alarmed for the better part of the night. Read on for more equipment woes.

We tire of the hospital

Thankfully, we did not have to go to the hospital again tonight, but we almost did. During Namine’s afternoon nap, the pulseox reported O2 sats of 75 and under. Namine, being sick, should still be able to keep it above 80. If she doesn’t, we’re under doctor’s orders to call her pediatrician. Jessica did, and of course they passed the buck (I called it!) to pulmonary at Children’s Hospital.

Good news and bad

The good news, of course, is that Namine came home from the hospital yesterday. She’s doing okay, all things considered, seeing as she’s still got a cough – although she’s not coughing as much crap up anymore. The bad news is that she has a hard time keeping her O2 above 80 while she’s sleeping. We’re glad we still have oxygen, because without it, we would have taken her back into the ER.