We should have named her “Hoover”
Namine is eating so much now that her palate is fixed, it’s not even funny. When I got home from work last night, she still had therapy going. The therapist told me she ate so much stuff (of course I don’t remember everything) and then for dinner, she ate even more. She likes puffcorn (like…
If I have any regrets as a father, it is that Namine will never meet on this side of heaven her Grandpa Tarver. I have met few people so unafraid to speak exactly what is on their mind. When I first met him, I thought him to be a harsh man. I thank God for…
Namine’s trach/vent clinic visit
Today is the last day that Namine has to wear arm restraints! Yay! Nothing really much to report from Namine’s trach/vent clinic visit. Last time, they found that she had an infection in her right ear. That’s gone now. We should find out soon if we can get her decannulated this summer. Speaking of, we…
Namine’s ortho clinic visit
So we took Namine to her second ortho clinic visit. The first one was a long time ago now, so they wanted to see her again. I can never seem to remember the ortho doctor’s name, maybe it’ll come to me as I type this. Anyway, he explained basically the same thing he explained over…
Namine’s office visit
After picking Jessica and Namine up from the clinic visit at the hospital, we stopped by my office, which happens to be just down the road. I don’t remember if we’ve ever taken Namine into my work to play show-and-tell before, but if we have, it was a long time ago. So either way, it…
Namine’s palate is okay
Namine had her clinic visit with her plastic surgeon this morning. Nothing but good news: her palate has no damage, and is healing nicely. More later!
I set Namine down in the kitchen so I could draw all her meds this morning, by a bunch of her toys and books. Then I went into the living room to set up her breathing treatments. She followed me there a little while later scooting along on her bottom, all the while clutching one…
You know, all too often we focus on the bad and forget about the good. So I end up posting when Namine has surgery, or is sick, or something goes wrong. But the point of her blog is not just to document and communicate her problems and issues, but also to tell people about how…
It just rolls off the tongue: “Namine’s cleft palate.” For nearly two years, it’s been that way. So whenever I say it or type it, it’s still those three words. But no longer! It’s been a week since her palate, no longer cleft, has been repaired.
Now that we’re home, I think we can breathe a little easier. I fed Namine some applesauce and pureed bananas (neither of which she ate much), but I think that after being used to feeding herself, it’s somewhat frustrating to be fed by someone else again. We are willing to remove her arm restraints while…
Kids, it’s official. They discharged Namine this morning, and now we’re going home! Nothing has really changed, as far as Namine’s condition. We’ll keep you posted on how she’s doing.
Sleep, perchance to dream
Namine is asleep, at last. Since we’re here in the hospital, and she’s feeling so crappy, we have temporarily suspended our rule that Namine is to nap no later than 5, maybe 6 in the evening. We came to deciding on this rule, as all parents come to decide what is best for their children:…