walking
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Fearless
It wasn’t Namine’s first birthday party – that honor was given to her friend from HealthReach last year, I think – but it was her first time in a dance studio.
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Foot pre-surgery
Since I woke Namine up this morning, she’s been excited. She knows – well, knew, since she’s been taken back for surgery now – what’s coming, and what it means. I’ll let her tell you in her own words: “I’m having foot surgery today, so I can have my feet fixed and I can walk…
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One step ahead
Namine’s foot surgery is a week from tomorrow. The week prior to any surgery is fraught with second thoughts, dread, and frayed nerves. Are we doing the right thing? How do we know? These are just a couple of the questions that plague us – they plague us every time. We second-guess ourselves, but at…
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Round and round we go
The most frustrating thing, I think, about Namine being a quote-unquote “special needs child” is not her medication, fragile immune system, or even doctor appointments. Perhaps a year or two ago I would have said differently, but now that she is stable, it’s dealing with the school system.
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School’s out
Jessica and I have decided to pull Namine out of school.
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Appointments lately
Namine had an appointment at the ENT clinic the other day. The news was not surprising, and not very alarming, either. Namine still has an ear infection in her left ear, but thankfully it is only still in her left ear. We’ve already got ear drops, though, so we’ll be giving those to her until…
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The strength of a child
You might recall, from before all the excitement about Namine getting her own room and the genetics appointment, that Namine has a cough.
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Pain and progress
Namine is a peculiar combination of tough and delicate.
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Progress at PT
Yesterday Namine had physical therapy.
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Amazing from the ordinary
Jessica, Namine and I went to a running store yesterday. Jessica needed a pair of shoes with good arch support, physical therapist’s orders. And the shoes with the best arch support are running (or sports in general) shoes. My dad came along to give advice on which kind would be best. I wasn’t needed; only…