surgery
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Skin graft successful
Namine is resting in her room in the PICU. She’s being kept overnight, because she is, after all, a heart patient above all else. The graft was successful, and her doctors are confident she’ll be able to go home tomorrow.
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Skin graft today
Namine was taken back at about 8:15 this morning for her skin graft procedure. We’re told that it should only take about an hour and a half, but we’ll see. Being as delicate a procedure as this is, we’re just concerned with Namine’s well-being.
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One step closer to home
Time stands still in the hospital. But at the same time, the days rush by in a blur. Every day brings us one day closer to going home.
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At last, relief
Namine is out of surgery. She will be brought back up to the ICU soon, and she is doing well. The artery in her left foot has been grafted once more and is profusing nicely, and there has been no tissue loss.
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More complications
To be as blunt and straightforward as possible: Namine is in danger of losing her left foot. She is in surgery now, and the doctors are doing all they can to ensure its safety.
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Complications: an update
Just got another update from the operating doctor.
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Foot pre-surgery
Since I woke Namine up this morning, she’s been excited. She knows – well, knew, since she’s been taken back for surgery now – what’s coming, and what it means. I’ll let her tell you in her own words: “I’m having foot surgery today, so I can have my feet fixed and I can walk…
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One step ahead
Namine’s foot surgery is a week from tomorrow. The week prior to any surgery is fraught with second thoughts, dread, and frayed nerves. Are we doing the right thing? How do we know? These are just a couple of the questions that plague us – they plague us every time. We second-guess ourselves, but at…
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A blood draw, and waiting
Yesterday Namine had a blood test done at the pediatrician’s office. Normally I’ll manage to get away from work to be there, as Jessica gets queasy at the sight of blood and it bothers me not a bit, but I had a presentation to give. So three nurses held down a screaming, crying Namine to…
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Weight gain and loss
Do you remember those days – it seems so long ago – when we were told by GI doctors that Namine was not gaining weight, and that she’d have her g-tube until the third grade?
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Cleft palate clinic
I can never remember if I’m supposed to refer to Dr. Denny’s team as the “cleft palate team” or just the “palate team.” I imagine it’s the latter, since the good doctor does all sorts or palate work. But since Namine had a cleft palate, that term just sort of stuck with us. At any…
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Things fall apart
I follow a wide range of people on Twitter – special needs parents and experts, individual programmers, as well as companies. I also follow a few joke accounts. A couple days ago, a tweet by @soveryawkward struck me to my core.