speech
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A night without incident
Last night was calm and free of any falling out of bed, I am happy to say.
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Moments worth celebrating
There’s a word that circulates the special needs community, that I come across now and again. That word is “inchstone” – as opposed to “milestone.”
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Sidewalk arteest
It was a nice day today, so Namine got to draw with chalk on the sidewalk outside today. Jessica took a short video of her, and I’ve uploaded it for your viewing pleasure. You even get to see the little smarty pants give some attitude near the end.
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Video made of awesome
Words fail me. Click the link. Click it!
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Chest x-ray results
What the title says. Unfortunately, “Namine is not sick anymore” is not part of it. We’re still fighting whatever she has – whatever is giving the raspiness in her chest. On the plus side, though, Dr. Gordon is back in town and we got the okay to bring Namine in for a chest x-ray. Thanks…
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Preliminary IEP
This morning was Namine’s pre-IEP IEP. They called it the “preliminary IEP” – more like preliminary waste of time. We talked, we exchanged information, but no real decisions were made. We decided to make decisions, though. Does that count? After the meeting was said and done, nothing was committed. We signed a form or two,…
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Difficulty speaking
Namine speaks in nearly all vowels. For whatever reason, she doesn’t make any plosive sounds. That is, B/D/P/T kind of sounds. She can make Ms, Ns (okay, with a little more difficulty), and Ls. But plosives, she can only seem to make when she plugs her nose. Speech therapy was concerned that it wasn’t just…
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Mip meam
The other night, I split a bowl of ice cream with Namine. I topped it with Cool Whip, which she’d been asking for. She’d been asking for “mip meam” (whipped cream) for several days, actually, and I by a stroke of luck I remembered this when I ran to the store the other day to…
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Pool therapy, again
An alternate title for this post could be “crossing our fingers.”
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On communication
Every so often, I’ll come across a post or a tweet from other special needs folks that will inspire a post of its own here on our site.
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Singing before bed
Every night before bed we sing songs. Sometimes they’re hymns out of the hymnal, sometimes they’re lullabies, and sometimes they’re children’s songs. I decided to try to capture Jessica and Namine singing “Jesus Loves Me” to show you how Namine is starting to sign along with the song.
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Like second nature
I had an interesting thing happen to me on Friday. Of course I didn’t get to talk about it because more important things happened. But Namine is doing better now, so I can bring it up. Anyway, this reminded me how being the parent of a special needs child has changed me. It has shaped…