sleep study
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After Namine’s sleep study
Kids, as much as I’d like to tell you that Namine had her trach taken out today, alas, I cannot. Contrary to what we were told by lying or possible willful ignorant trach/vent nurses, decannulation is not that simple. We have to wait a week for the results of her sleep study, and then we…
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Sleep study
This’ll be a quick post, because I’m writing from my phone. Namine is asleep now, but she wasn’t happy. She’s got wires all over her head to monitor her stats, and a cannula up her nose to monitor her carbon dioxide. Considering she’s breathing through her nose, I’m a little concerned. Right now, she’s statting…
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OrthopIDIOTS
It’s like in Home Alone 2, where Kevin’s mom asks the concierge, “What kind of idiots do you have working here??” He replies, “The finest in New York, madame.” The 23rd of July, a Friday, was Namine’s scheduled foot surgery, and they canceled that. They told us they would call us back the following Monday.…
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Club foot repair canceled
We got a call this morning from Children’s Hospital. Due to the weather, Namine’s orthopedic surgeon, Dr. Thometz, would not be in today. As a result, her surgery is canceled. They will reschedule sometime early next week.
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From vacation to decannulation
It’s always hard to get back into the swing of the daily routine after a vacation, even a small one like a 3-day weekend. (Of course, the nature of Namine’s condition and medication needs still require a semblance of routine, even on vacation. But it was still nice to relax and to be able to…
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Namine’s trach/vent clinic visit
Today is the last day that Namine has to wear arm restraints! Yay! Nothing really much to report from Namine’s trach/vent clinic visit. Last time, they found that she had an infection in her right ear. That’s gone now. We should find out soon if we can get her decannulated this summer. Speaking of, we…
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Visiting the plastic surgeon
Today Jessica took Namine to see Dr. Denny, the plastic surgeon. After the results of the sleep study, CT scan, and bronchoscopy, he said that she’s a good candidate for having a jaw distraction. We know she’s doing well, but it’s still reassuring to hear a doctor say it. Namine will be scheduled for the…
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Holy Crap
It’s been a looooong time since an update. I apologize for that, and I can only hope that we still have some readers! Jessica and I are without an internet connection at the moment. I don’t really know how long I have to post this, either. It all depends on when “linksys” realizes someone is…
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Well What Can I Say.
Hello Family and Friends, Well it is a day that has come and gone. Namine was supposed to come a long time ago, but that day was pushed back for one reason or another. Then she was supposed to go home a different day that was pushed off for one reason or another. Then she…