·  Normal is a dryer setting.


Chest pain

We had a little bit of a freak-out when Namine complained of chest pain, but it seems to be nothing more than a pulled muscle.

Joint concerns

Joint problems are really not something you think about with a two year old. But caudal regression has a greater impact than you’d think. It’s not just her lower body that it affects – that is, her hips, legs and feet – but joints, internal organs, and possibly even skeletal density.

Her quiet strength

Yesterday morning, Namine proved that all the therapy with her legs and feet is paying off. She stood up in her crib. Now, to clarify: she cannot yet stand up on her own; she needs something to hold on to, but she is able to pull herself up with more ease each day. But Namine had never before attempted to stand up in her crib, and she usually doesn’t try to stand unless either Jessica, a therapist, or myself are present. The fact that she is willing to attempt it by herself tells me a few things: she is becoming even stronger, physically; she is becoming more independent; and perhaps most importantly, she is becoming more confident in her own abilities.

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