hospital
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Pre-Fontan evaluation
Namine had a heart catheterization in preparation for the Fontan.
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Aaand it’s gone.
Okay, it turns out that Namine is scheduled for the 2nd after all. le sigh
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Reschedules all up ins
When Namine’s heart catheterization was scheduled for July 2, it was only because that was the only opening. Even so, we’ve had plenty of experience with Children’s Hospital rescheduling us with hardly a moment’s notice. We were rightl to be apprehensive.
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Surgery drawing near
We consider the benefits of the Fontan now versus later.
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Echo tomorrow
Nearly every cardiology visit is filled with big and scary words. Tomorrow’s word of the day is echocardiogram. (Am I supposed to put a hyphen or space in there somewhere? As a self-taught medical student – by necessity, you understand – I can never remember.)
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Crazy days
With Jessica’s mom in the hospital, that’s where we’re spending nearly all of our free time.
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Heart appointment today
We met with Namine’s cardiologist today. With Namine’s O2 stats being lower since last weekend, our main concern was that the time for the third heart surgery, the Fontan, was drawing near. That’s a train you don’t want to miss.
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In recovery
Namine has been taken up to the recovery room. She’s resting fitfully now; she’s also in quite a bit of pain.
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Uh oh
So we’re here in the waiting room, and something has gone wrong. A patient of Namine’s first foot surgeon (for those that remember). I am not surprised at all. Nor am I surprised at the fury and rage I feel rising up in me all over again.
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Bronchoscopy done!
That was fast. The ENT doctor just came back to tell us that she finished examining Namine’s mouth, airway, and ears. Everything looks good!
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Old enough to know
Namine has been taken back to have her procedures. I’m nervous; but then, I’m always nervous. No procedure any gets easier, even something as routine as a bronchoscopy. What’s more, it’s harder for Namine now more than ever, as she understands what she did not in the past.
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Procedures tomorrow
We’re headed off to the hospital tomorrow, for more procedures. Namine is having two things done: dental work and a bronchoscopy.