heart surgery
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Love’s own reason
Perhaps you’ve heard; perhaps not. The divorce rate for special needs parents, according to word of mouth, is 85%. I’ve also heard 82%. Upon doing some research, though, it’s hard to know where this statistic came from, or exactly how old it is. (With the assumption that the divorce rate goes up each year, that…
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Preliminary IEP
This morning was Namine’s pre-IEP IEP. They called it the “preliminary IEP” – more like preliminary waste of time. We talked, we exchanged information, but no real decisions were made. We decided to make decisions, though. Does that count? After the meeting was said and done, nothing was committed. We signed a form or two,…
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The day Namine was born
I’m too stunned. Events are happening too fast for me to react. I have no idea what time it is. I’ve brought my wife into the hospital because labor has started; the day is finally here – our daughter is being born.
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Cardiology appointment tomorrow
As we get closer to the Fontan, we have to learn the symptoms of low blood-oxygen levels.
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Parenting is an ad-lib
This is especially true for raising a special needs child.
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Taking a deep breath
Of all the things that we fear above all else, as parents of a post-trach child, is respiratory illness.
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Giving thanks
Currently on this Thanksgiving Day, my two loves are napping. We all ate a lot at Jessica’s sister’s house, and are sufficiently full. I can’t nap – I get a migraine if I do. (As it is, I wake up every day with a headache. But enough of that. You’re here to read about Namine,…
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Are you wearing purple today?
November is a month for awareness, the big one being breast cancer. Several of my Facebook friends have changed their pictures to have the pink breast cancer awareness ribbon; others have tinted theirs pink. November is also the month for prematurity awareness, and its color is purple. Premature birth is one of the major causes…
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Special needs week
Some thoughts on recent special needs-related Facebook posts.
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Much news
Happy horse day! Today Namine had equestrian therapy, and Jess said she enjoyed it quite a bit. I’m told the benefits will far outweigh her smelling like a horse. I kid, I kid. But on to other serious matters. Namine also had a cardiology appointment, and I got a call from pulmonology about her decannulation.…
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Birthday photos complete
Okay kids, I’ve uploaded the rest of the pictures. FileZilla hates me, but I got it done. I built the other page for the 8×10 photos too, so browse to your hearts’ content.
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Picnic day, part 2
I never got a chance to post about the rest of our picnic day, when we went to my uncle’s for the Eiche family get-together.