heart surgery
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The moment you fear
Last week Namine had a blood draw in order to check for things. Things that would explain her recent lethargy and lack of appetite. Friday evening we got a call from the pediatrician, who said that there is nothing to indicate sickness. The next step? Contact cardiology at Children’s Hospital.
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A blood draw, and waiting
Yesterday Namine had a blood test done at the pediatrician’s office. Normally I’ll manage to get away from work to be there, as Jessica gets queasy at the sight of blood and it bothers me not a bit, but I had a presentation to give. So three nurses held down a screaming, crying Namine to…
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Matters of heart
We let Namine wheel herself into church yesterday morning, and she could not have been happier. For most of the church service, she sat still on the floor, hands folded, and listened to pastor. She also likes to page through the hymnal, looking at the music.
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Physical therapy day
I meant to talk about this some time ago, but you know how things are. Busy busy busy, that’s us. So anyway, apparently September 9 is Physical Therapy Day. I missed the date, perhaps, but it’s never too late to talk about the benefits of PT.
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Scary sats and an x-ray
When Namine drops her sats, our immediate thought is that she’s getting sick. Well, she’s already sick, so it would be no surprise that her sats are down a little. But Namine was down to 81 this morning, and that’s frightening. To make matters worse, Namine woke up with the croup again.
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The child who never was
I’ve seen quite a bit lately on Twitter about grieving your child’s special needs.
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Echo results
On Friday Namine had her echocardiogram. Once again, like with Monday’s ultrasound, Namine was afraid of the tech and having the echo done. But when she realized that this was painless, she was fine. She lay perfectly still for the entire thing, much to the tech’s surprise.
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Echo tomorrow
I’m sure that you’ve heard already – Namine’s echocardiogram (or is it two words – echo cardiogram?) is tomorrow. We’re plenty nervous, but we’ve had plenty of time to get our jitters out. We’re ready for the news, be it good or bad.
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Appointments lately
Namine had an appointment at the ENT clinic the other day. The news was not surprising, and not very alarming, either. Namine still has an ear infection in her left ear, but thankfully it is only still in her left ear. We’ve already got ear drops, though, so we’ll be giving those to her until…
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Therapy and school
This morning a physical therapist came to the apartment to evaluate Namine. But this was no ordinary PT – if there is such a thing – this was a PT from the school district. She was there to examine Namine in order to determine what kind of therapy she might need when she starts attending…
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The best reason
One of my favorite phrases since becoming a special needs parent (though we don’t think of ourselves like that; we’re just parents taking care of our baby girl) is “I’m not an expert, but I play one in real life.” I’m not sure where I picked it up. Regardless, I love this saying because for…
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Happy Mother’s Day
This post could easily be called “a look at our nearly three years of parenthood.” I know some moms who would not share this day with their husbands for their life, but thankfully Jessica is not like that. We both feel that we would not be as good separate. We would not be complete.