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Beautiful disaster
We prefer messes to perfection. The life of a parent is messy. There’s poop and vomit and grass stains and permanent markers and “How did you get that up your nose?” And you know what? We like it that way.
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My child with a disability is my hero
I’d like to explain why Namine is my hero.
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Cute cacophony
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Jumping around
I’ve been writing a lot about how Namine is regaining strength in her arms and legs, and I think that’s awesome. It’s crazy to think that it’s already been nearly six months since the Fontan.
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Trying something new
It seems that it’s only when Jessica is sick that I get to take Namine to therapy.
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Improving speech
Namine had speech and physical therapy today. She has her good days and bad days, as anyone does, and today was a particularly good day.
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Sleepover
I was supposed to write about a sleepover with Namine from a couple of weeks ago but then college got in the way. What are you gonna do? But, anyway, I was lucky enough to be home this weekend and got another sleepover to write about!
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Helping out
Chores are no fun, I know. But in giving Namine things to be responsible for – like keeping her room clean, and sweeping the kitchen – we hope to provide a basis for establishing work ethic.
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Namine’s stockpile
I love Nerf guns. I always have. It’s been a lifelong obsession of mine to get whatever latest crazy Nerf gun that has come out, whether I am going to use it a lot or not. (Hint: not.)
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Climbing into the wheelchair
Namine’s physical therapist has been working with her lately on climbing into her wheelchair. It’s been slow going, and we’re not sure why. We have some theories, though.
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Junabee Bajones
A while ago, Namine and I started reading chapter books. We’ve finished a book on Helen Keller, which she enjoyed very much, and the first in the Junie B. Jones series of books. Namine calls her “Junabee Bajones.”
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Trip to Penzey’s
Yesterday we went to Penzey’s to get some spices.