I’ve been writing a lot about how Namine is regaining strength in her arms and legs, and I think that’s awesome. It’s crazy to think that it’s already been nearly six months since the Fontan.

I think Namine has more strength in her legs now than she did before the Fontan, and her arms are close. We used to play “wheelbarrow” – in which I would lift her legs, and she would pedal around the apartment on her arms – and it wasn’t long ago that she could barely go a few steps. But just a couple days ago we went all the way from in the kitchen to the living room, shouting and laughing.

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Over the weekend, Namine decided to try jumping. I’m not talking about bouncing on her bed; she does that all the time, and it’s not really jumping. No, she actually lifted her legs in the air, while her hands remained planted on the floor.

  • The pure joy of small milestones that many people don’t even realize.

  • Jen, Jeremy & Jacob Schultz

    Great work, Namine!!!!!!!!!!!!!!!!!!