We thought we were past the lunacy of IEPs. We were wrong.
Just last week Namine couldn’t even move while on her Radio Flyer bike. No longer – she straps it on and gets it done.
Namine pulled her loose tooth out. No, it wasn’t ready to fall out yet. She just decided it was time to go, and yanked it.
Sometimes I think I don’t give enough conscious thought to advocacy – or to be more precise, self-advocacy. Namine is, after all, only five. But she’s growing up fast (too fast for this parent, that’s for sure), and she must be able to speak about herself on her own terms.
We had a busy day weekend. We saw Frozen (this being Namine’s third time and my first) and we cleaned the apartment. Well, most of it. This morning, I don’t know if Namine is paying for being out in the cold, but she woke up with a croupy cough.
Thanks to the awesome folks over at Pierre Robin Sequence Foundation for including Namine in one of their promotional images.
I learned two things today. First, if I have enough aluminum cans to fill my car, it can get us enough money to go see a movie. Second, I haven’t had a song stuck in my head like this since I saw Aladdin when I was twelve.
Six months after completing the Fontan, Namine’s heart is doing phenomenally well.
We use Eclipse and CVS for development work and version control at work. It’s a pipe dream of ours to migrate to Git, but that’s another story altogether. At any rate, I found myself needing to restore a file whose deletion had been committed, and I had no idea how to do it. As it turns out, it’s stupidly easy.
We prefer messes to perfection. The life of a parent is messy. There’s poop and vomit and grass stains and permanent markers and “How did you get that up your nose?” And you know what? We like it that way.