February 2014
-
This girl is hardcore.
Namine pulled her loose tooth out. No, it wasn’t ready to fall out yet. She just decided it was time to go, and yanked it.
-
On advocacy
Who should speak for the disability community? Sometimes I think I don’t give enough conscious thought to advocacy – or to be more precise, self-advocacy. Namine is, after all, only five. But she’s growing up fast (too fast for this parent, that’s for sure), and she must be able to speak about herself on her…
-
Sick this morning
We had a busy day weekend. We saw Frozen (this being Namine’s third time and my first) and we cleaned the apartment. Well, most of it. This morning, I don’t know if Namine is paying for being out in the cold, but she woke up with a croupy cough.
-
Keep your chin up!
Thanks to the awesome folks over at Pierre Robin Sequence Foundation for including Namine in one of their promotional images.
-
Namine’s Frozen medley
I learned two things today. First, if I have enough aluminum cans to fill my car, it can get us enough money to go see a movie. Second, I haven’t had a song stuck in my head like this since I saw Aladdin when I was twelve.
-
Celebrating a healthy heart
Six months after completing the Fontan, Namine’s heart is doing phenomenally well.
-
Restoring a deleted file from CVS
We use Eclipse and CVS for development work and version control at work. It’s a pipe dream of ours to migrate to Git, but that’s another story altogether. At any rate, I found myself needing to restore a file whose deletion had been committed, and I had no idea how to do it. As it…
-
Beautiful disaster
We prefer messes to perfection. The life of a parent is messy. There’s poop and vomit and grass stains and permanent markers and “How did you get that up your nose?” And you know what? We like it that way.
-
My child with a disability is my hero
I’d like to explain why Namine is my hero.
-
Cute cacophony
-
Jumping around
I’ve been writing a lot about how Namine is regaining strength in her arms and legs, and I think that’s awesome. It’s crazy to think that it’s already been nearly six months since the Fontan.
-
Trying something new
It seems that it’s only when Jessica is sick that I get to take Namine to therapy.