August 2013

  • The long haul

    Not too long ago, the OR nurse came back to give us a status update. It took awhile to get Namine’s lines in, but now they’re getting ready to put her on the heart-lung machine. She was intubated without incident, and she’s doing well. Waiting is the hard part, and we’re in it for the…

  • The Fontan is now

    Saying goodbye never gets easier. Just about a half hour ago, we left Namine in the doctors’ care, screaming for us. Screaming for us not to leave her, to please, please come back with her. My heart breaks every time. My goddamn heart. But it’s not for my heart – it’s for hers. Today is…

  • So Keep was updated yesterday

    … and it’s about time. I had begun to wonder if they’d forgotten all about it. I decided to check out Google’s official Chrome app again, in case they’d added anything new, like maybe account switching. They haven’t. (Account switching, by the way, is supported in my extension. Just sayin’.)

  • Then and now

    Then and now

    How Namine has grown.

  • Omega loops

    Sounds like something out of a sci fi movie, doesn’t it? It’s not. It’s what Namine had placed in her mouth today, in preparation for her new prosthetic.

  • To clip or not to clip

    Do you remember the speech pathologist? You know, the one who insisted that Namine’s frenulum needed to be clipped time after time, even though no one else agreed? Well, he’s changed his mind.

  • A night at the Urgent Care

    Last night after her bath, Namine told me, “Daddy, my throat feels funny.” “Funny, like ha-ha funny, or weird funny?” “Weird funny.” She was rubbing the front and side of her neck, so after getting her dressed I brought her into the living room so Jessica could look at her. After looking in her throat…