·  Normal is a dryer setting.

July 2012

Feet, baths, and IEPs

Well, kids, it’s official. Namine’s feet have been declared just fine and dandy (if more than a little smelly) by both her orthopedic and plastic surgeons. This is momentous news indeed!

Cast removal

Today is a big day. Namine usually sleeps in until at least 9 or 10, but she woke up before I left for work this morning. When Jessica asked her what today was, she said with no hesitation: “Today I get my casts and boots off!”

News and a birthday

Hi kids, we’ve got a lot going on, so I’ll try to catch you up. The results of Namine’s cardiac appointment last week went very well. Namine’s primary cardiac doctor left to work at another hospital, so she’s got a new doctor – but not completely new, because he’s been following her since birth as well – and it was time to make sure we were all on the same page, so to speak.

Cardiac appointment tomorrow

Tomorrow Namine has a cardiac appointment. We don’t expect anything out of the ordinary, but as time goes on, she approaches that unknown day: the day when she needs the third heart surgery, the Fontan. Until then, we remain vigilant.

Going home today

Namine is playing on her laptop while we wait for Jessica to come pick us up from the hospital. “Who’s your best friend?” Her laptop asks. Namine looks at me, giving me the biggest grin. “My best friend is my Haha! He makes my feet feel all better.” How undeserving I am of such an amazing daughter.

Skin graft successful

Namine is resting in her room in the PICU. She’s being kept overnight, because she is, after all, a heart patient above all else. The graft was successful, and her doctors are confident she’ll be able to go home tomorrow.

Skin graft today

Namine was taken back at about 8:15 this morning for her skin graft procedure. We’re told that it should only take about an hour and a half, but we’ll see. Being as delicate a procedure as this is, we’re just concerned with Namine’s well-being.

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