memorial day

  • Memorial Day weekend sickies

    Memorial Day weekend sickies

    Both Jessica and Namine were sick over Memorial Day weekend, but we still were able to enjoy ourselves.

  • In loving memory

    In loving memory

    It’s a little late for a Memorial Day post, but better late than never.

  • Memorial Day weekend

    Memorial Day weekend

    We visited my aunt for Memorial Day weekend. We had a lot of fun!

  • Namine’s trach/vent clinic visit

    Today is the last day that Namine has to wear arm restraints! Yay! Nothing really much to report from Namine’s trach/vent clinic visit. Last time, they found that she had an infection in her right ear. That’s gone now. We should find out soon if we can get her decannulated this summer. Speaking of, we […]

  • Vacation

    We made it to my aunt’s house around 4 this afternoon. When I took Namine out of the car, hoo boy was she sweaty. Thank goodness the weather is nice, though. Yesterday Namine had her pre-op clinic visit, necessary prior to surgery next week. Everything is looking good, and she’s approved for the repair. So, […]

  • Finally:)

    Sorry everyone for not posting more often.  It has been quite a hectic past couple of months.  Namine has been home since March and doing great.  We spent two days in the hospital for heart monitoring and they called it equipmentitis.  She has been stating in the low 90’s to even 100% O2 stats at […]