hospital
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Happy birthday Namine!
Namine turns 2 today! She’s come so far in such a short time, but it doesn’t feel like a short time. We’ve been through so much, and she’s just as strong, if not stronger. Judging by how sassy she is lately, she is definitely 2. I think she’s most likely eat more cake this time…
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From vacation to decannulation
It’s always hard to get back into the swing of the daily routine after a vacation, even a small one like a 3-day weekend. (Of course, the nature of Namine’s condition and medication needs still require a semblance of routine, even on vacation. But it was still nice to relax and to be able to…
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Namine’s trach/vent clinic visit
Today is the last day that Namine has to wear arm restraints! Yay! Nothing really much to report from Namine’s trach/vent clinic visit. Last time, they found that she had an infection in her right ear. That’s gone now. We should find out soon if we can get her decannulated this summer. Speaking of, we…
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Namine’s ortho clinic visit
So we took Namine to her second ortho clinic visit. The first one was a long time ago now, so they wanted to see her again. I can never seem to remember the ortho doctor’s name, maybe it’ll come to me as I type this. Anyway, he explained basically the same thing he explained over…
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Namine’s office visit
After picking Jessica and Namine up from the clinic visit at the hospital, we stopped by my office, which happens to be just down the road. I don’t remember if we’ve ever taken Namine into my work to play show-and-tell before, but if we have, it was a long time ago. So either way, it…
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Namine’s palate is okay
Namine had her clinic visit with her plastic surgeon this morning. Nothing but good news: her palate has no damage, and is healing nicely. More later!
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Namine’s palate
It just rolls off the tongue: “Namine’s cleft palate.” For nearly two years, it’s been that way. So whenever I say it or type it, it’s still those three words. But no longer! It’s been a week since her palate, no longer cleft, has been repaired.
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Going home!
Kids, it’s official. They discharged Namine this morning, and now we’re going home! Nothing has really changed, as far as Namine’s condition. We’ll keep you posted on how she’s doing.
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Sleep, perchance to dream
Namine is asleep, at last. Since we’re here in the hospital, and she’s feeling so crappy, we have temporarily suspended our rule that Namine is to nap no later than 5, maybe 6 in the evening.
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The path to recovery
Namine is asleep, so I think now is as good a time as any to update everyone on how she’s doing. The hardest thing a parent has to do, I think, is sit and watch their child in sickness, knowing they can do little to lessen the pain, and nothing at all to improve their…
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A turn for the worse
While the cleft palate repair itself was successful, Namine has developed complications. She has had a lot more blood than the doctors expected in her stomach, which is making it upset. She almost threw up once, so they gave her something to ease the nausea. She also has quite a bit of blood in her…
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Palate closure successful!
Not long after I had finished updating the blog, Dr. Denny came out and said he was done. It turns out that since Namine was already asleep, he just started without coming to talk to us.