• Clinic Visit

    Good news from the plastic surgeon, plus more excitement than we planned for.

  • Visiting the plastic surgeon

    Today Jessica took Namine to see Dr. Denny, the plastic surgeon. After the results of the sleep study, CT scan, and bronchoscopy, he said that she’s a good candidate for having a jaw distraction. We know she’s doing well, but it’s still reassuring to hear a doctor say it. Namine will be scheduled for the…

  • Tests, naps, and road trips, oh my

    Welcome to our new virtual home on the interwebs, Since is the new family website, this’ll be home to more than just Namine’s blog, but not to worry! Just click on Namine’s name under the categories there on the right. Or just go to and you’re all set. I hope everybody enjoyed their holiday…