Hey there you all.
I just want to update you on the news that we got yesterday from the doctor. The baby is a girl and this is how things are looking from here. She will have to have surgery right after she is born, because the valve pumping to the lungs is bigger than the valve pumping to the body. At anywhere from 4-6 months she will have to have another surgery to remove the valves pumping to the lungs and they will bypass the heart. Then when she is 3 she will have another surgery on her heart. This information you all know.
The information we got yesterday was a little more than disturbing. The baby has another defect that is called caudal regression. Basically what this defect is, is the lower half of the baby isn’t growing properly. The tail bone is backwards and her legs are ten weeks behind the rest of her body. The defect is also known as a form of dwarfism. She also has two clubbed feet. I am not sure if she will be able to walk or even stand on her own.
From what we have read on the defect the people with this defect can’t control their bowels, and there is a possibility that she will be mentally challenged. Well that has been my hell for the past couple of months and to top things off the doctor said that there could be other things wrong with her because of this defect that we won’t be able to see until she is born Please pass this on to anyone that I may have forgot. Please keep us all in your prayers.
Jessica, Paul and Namine Eiche