walker
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Amazing little girl
Because I can never get enough of seeing Namine do what they said she’d never be able to.
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A couple videos of Namine on the treadmill
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Surgery drawing near
We consider the benefits of the Fontan now versus later.
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We want the same thing
Namine is so easygoing most of the time, it’s easy to forget how stubborn and iron-willed she can be. Monday morning, she spent the first ten minutes of physical therapy stonewalling the therapist.
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Namine standing
Namine showing how tall she is. I love it!
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IEP, again
Jessica and I had the IEP meeting – reevaluation? I’m not sure exactly – this morning. So we had a choice: either bring Namine with us at 7:45 this morning, or get someone to watch her. My mom was kind enough to come over and stay with her. The meeting didn’t take too long, fortunately,…
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Fearless
It wasn’t Namine’s first birthday party – that honor was given to her friend from HealthReach last year, I think – but it was her first time in a dance studio.
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Foot pre-surgery
Since I woke Namine up this morning, she’s been excited. She knows – well, knew, since she’s been taken back for surgery now – what’s coming, and what it means. I’ll let her tell you in her own words: “I’m having foot surgery today, so I can have my feet fixed and I can walk…
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One step ahead
Namine’s foot surgery is a week from tomorrow. The week prior to any surgery is fraught with second thoughts, dread, and frayed nerves. Are we doing the right thing? How do we know? These are just a couple of the questions that plague us – they plague us every time. We second-guess ourselves, but at…
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Round and round we go
The most frustrating thing, I think, about Namine being a quote-unquote “special needs child” is not her medication, fragile immune system, or even doctor appointments. Perhaps a year or two ago I would have said differently, but now that she is stable, it’s dealing with the school system.
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School’s out
Jessica and I have decided to pull Namine out of school.
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Appointments lately
Namine had an appointment at the ENT clinic the other day. The news was not surprising, and not very alarming, either. Namine still has an ear infection in her left ear, but thankfully it is only still in her left ear. We’ve already got ear drops, though, so we’ll be giving those to her until…