surgery
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Tummy surgery: mid-point
The nurse in the OR just called in to the waiting room to inform us that they finished the g-tube removal and fistula closure. She didn’t say exactly how it went, but we remain optimistic because it only took them about an hour and a half. And they got the IV in on the first…
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Tummy surgery: pre-op
Namine has just been taken back into the operating room, so Jessica and I, along with Chyral and her boyfriend, have deposited ourselves into the waiting room. We expect to see more family before the day is out. (I was going to say “morning,” but it’s noon now.) We are told to expect about a…
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Looking ahead
Getting back into the normal swing of things is pretty difficult. Yesterday afternoon Jessica asked Namine if she wanted to go out for ice cream, sure that the answer would be a resounding “yeah!” But to her surprise, Namine said no. “Why not?” Jessica asked. Namine responded, “Ha-ha! Eye meam!” She didn’t like that I…
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Clinic appointment
Namine had a clinic appointment yesterday with special needs at CHW. It was really just an overview of how she’s doing, and what’s coming up. The long and short of it is, she’s remarkably healthy – even despite her recent sickness and having the croup at the moment – and she’s got at least several…
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A letter to the us we used to be
I was thinking about this the other day, and I thought it might make a good post. I feel it’s especially appropriate today, it being Rare Disease Day, according to the Center for Rare Diseases. You know Namine has DILV – double-inlet left-ventricle heart defect – and that’s rare enough, I suppose. But she also…
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When doctors are wrong
Namine has an appointment with her pediatrician today, but as I haven’t heard from my love how that went (if it’s even over yet), I’ll talk about something else. Ellen from Love That Max tweets: “When doctors tell you bad things – and they are WRONG. My cautionary tale.” She’s got a point. Doctors get…
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No Surgery Today
I have some good news and some bad news.