We went to the zoo this morning for the CHW Herma Heart Center’s picnic. Namine got a free HHC t-shirt. (siblings could get free shirts as well, but parent have to pay. What a gyp.) We saw a couple of doctors (including Dr. Mitchell!) and some other people we recognized but couldn’t place.
Kids, as much as I’d like to tell you that Namine had her trach taken out today, alas, I cannot. Contrary to what we were told by lying or possible willful ignorant trach/vent nurses, decannulation is not that simple. We have to wait a week for the results of her sleep study, and then we can go back to the hospital for decannulation.
It’s been a full day. Kinda hard to believe that it’s already 4 in the pm, actually. The day flew by! This morning was the first Jesus Cares meeting of the season (school year? whatever). We were late, but that’s okay. Considering all the equipment we have, I’d say we’re a little entitled. ;) Of course, everyone was thrilled to see Namine – and since the last time they saw her was just before Christmas, they were excited to see how much she’s grown. Speaking of how much she’s grown, I was perusing (now there’s a word you don’t get to use in everyday conversation very often) some Namine’s very first pictures the other day. It’s easy to forget how […]
Namine is doing awesome. She is having a blast with her new kid kart and is just enjoying the summer. Her birthday party is all ready and everything just needs to be set up, which we can’t do until Sunday. I pray that we have a day of sunshine so that we can be outside. Her cakes are ordered and food is all taken care of. If I missed anyone on the invite list and you would like to come just call us or email by Saturday. We wish everyone a Happy Fourth of July. Thanks to all of the troops that have served, are serving and those that are still in training. Thanks to all of those that gave […]