Namine stands up for what she knows is the right thing to do.
A question was asked on the Pierre Robin Sequence board:
As a parent to a special needs child, do you get offended when people ask “whats wrong” when they see a trach or something out of the norm with your child? how do you react to the question?
Jessica, Namine, and I were at the mall, doing some shopping, window and otherwise. I could do the typical guy thing and say they dragged me into Bath & Body Works, but it wouldn’t be true.
Namine and I had a talk about staring.
I’ve taken issue with McDonald’s labelling their toys for a while now. Namine proved me right.
At her end of the year school picnic, Namine made some new friends — but then, that’s never been a problem for her. And I was proud to witness her sticking up for herself.
Sometimes I think I don’t give enough conscious thought to advocacy – or to be more precise, self-advocacy. Namine is, after all, only five. But she’s growing up fast (too fast for this parent, that’s for sure), and she must be able to speak about herself on her own terms.
You can encourage kids to play together, but you can’t make them get along. Not everyone is willing to learn, to compromise, to share; not everyone is open to the idea that different is not bad.
The other night Jessica wasn’t feeling well, so I took Namine over to the park so she could have some peace and quiet. It threw our entire evening’s schedule off, but Namine didn’t mind.
Jessica, Namine, and I went to the zoo over the weekend with Jessica’s sisters Chyral and Melissa, and Melissa’s boyfriend Anthony. Namine, when she’s really excited, talks very very fast. In her excitement, she told me that Anshrel (Aunt Chyral), Anmel (Aunt Mel) and Ansunny (Anthony) would be joining us in going to the zoo. (“The zoooooo!”)