advocacy
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Yelling at police
We went to the mall and encountered some accessibility ignorance.
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Meeting with the dental surgeon
During a consult today, Namine proved to be her own best advocate.
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In defense of what is right
Namine stands up for what she knows is the right thing to do.
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Reacting to negativity
A question was asked on the Pierre Robin Sequence board: As a parent to a special needs child, do you get offended when people ask “whats wrong” when they see a trach or something out of the norm with your child? how do you react to the question?
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Good smells
Jessica, Namine, and I were at the mall, doing some shopping, window and otherwise. I could do the typical guy thing and say they dragged me into Bath & Body Works, but it wouldn’t be true.
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How to make friends
Namine and I had a talk about staring.
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Labels are dumb
I’ve taken issue with McDonald’s labelling their toys for a while now. Namine proved me right.
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Standing up for herself
At her end of the year school picnic, Namine made some new friends — but then, that’s never been a problem for her. And I was proud to witness her sticking up for herself.
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On advocacy
Who should speak for the disability community? Sometimes I think I don’t give enough conscious thought to advocacy – or to be more precise, self-advocacy. Namine is, after all, only five. But she’s growing up fast (too fast for this parent, that’s for sure), and she must be able to speak about herself on her…
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You can’t win them all
You can encourage kids to play together, but you can’t make them get along. Not everyone is willing to learn, to compromise, to share; not everyone is open to the idea that different is not bad.
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Playground time
The other night Jessica wasn’t feeling well, so I took Namine over to the park so she could have some peace and quiet. It threw our entire evening’s schedule off, but Namine didn’t mind.
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Noticing differences
Jessica, Namine, and I went to the zoo over the weekend with Jessica’s sisters Chyral and Melissa, and Melissa’s boyfriend Anthony.