Paul
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Out for a Monday drive
On my lunch break today I drove out to the medical supply store to pick up a nebulizer kit for Namine. This is the sad story of why I came back empty-handed, and more!
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Potty training
Potty training is hard to nail down in the best of circumstances. But add to the normal stress between parent and child the possibility – nay, the likelihood – that said child might not be able to have sufficient bladder control at all, well, things might get interesting. Then again, everybody involved might just learn…
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Deep breaths
Namine had a pulmonology appointment today. Getting the appointment set was stressful enough, to say nothing of the fact that we needed to make sure Namine’s lungs were okay. There’s no reason for alarm, though; Namine is fine, and the doctor was content with increasing her inhaler dose and prescribing an anti-inflammatory. Getting to this…
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Lies, damned lies, and IEPs
We thought we were past the lunacy of IEPs. We were wrong.
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Namine on her Radio Flyer bike
Just last week Namine couldn’t even move while on her Radio Flyer bike. No longer — she straps it on and gets it done.
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This girl is hardcore.
Namine pulled her loose tooth out. No, it wasn’t ready to fall out yet. She just decided it was time to go, and yanked it.
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On advocacy
Who should speak for the disability community? Sometimes I think I don’t give enough conscious thought to advocacy – or to be more precise, self-advocacy. Namine is, after all, only five. But she’s growing up fast (too fast for this parent, that’s for sure), and she must be able to speak about herself on her…
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Sick this morning
We had a busy day weekend. We saw Frozen (this being Namine’s third time and my first) and we cleaned the apartment. Well, most of it. This morning, I don’t know if Namine is paying for being out in the cold, but she woke up with a croupy cough.
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Keep your chin up!
Thanks to the awesome folks over at Pierre Robin Sequence Foundation for including Namine in one of their promotional images.
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Namine’s Frozen medley
I learned two things today. First, if I have enough aluminum cans to fill my car, it can get us enough money to go see a movie. Second, I haven’t had a song stuck in my head like this since I saw Aladdin when I was twelve.
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Celebrating a healthy heart
Six months after completing the Fontan, Namine’s heart is doing phenomenally well.
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Restoring a deleted file from CVS
We use Eclipse and CVS for development work and version control at work. It’s a pipe dream of ours to migrate to Git, but that’s another story altogether. At any rate, I found myself needing to restore a file whose deletion had been committed, and I had no idea how to do it. As it…