speaking valve

  • From vacation to decannulation

    It’s always hard to get back into the swing of the daily routine after a vacation, even a small one like a 3-day weekend. (Of course, the nature of Namine’s condition and medication needs still require a semblance of routine, even on vacation. But it was still nice to relax and to be able to do things at our own pace.) Especially when you have to get up early the next morning for an early clinic visit. But this one is well worth the lost sleep: a trach/vent clinic, but not just any – today we start down the road for Namine’s decannulation.

  • Namine’s trach/vent clinic visit

    Today is the last day that Namine has to wear arm restraints! Yay! Nothing really much to report from Namine’s trach/vent clinic visit. Last time, they found that she had an infection in her right ear. That’s gone now. We should find out soon if we can get her decannulated this summer. Speaking of, we […]

  • Namine: 2, Allergies: 1

    Today Namine had an appointment at Children’s Hospital with the allergy people. (I don’t really know what the department is really called. I doubt they call themselves “allergy people.”) Last time, we found out that she was allergic to cheese (but we’ve stayed away from all dairy, just to be safe) and rice. Today, they […]

  • Finally:)

    Sorry everyone for not posting more often.  It has been quite a hectic past couple of months.  Namine has been home since March and doing great.  We spent two days in the hospital for heart monitoring and they called it equipmentitis.  She has been stating in the low 90’s to even 100% O2 stats at […]