Holy crap, an update

Yes, kids, it’s been a while since our last update. I blame hospital visits for that one. I’m pretty sure I completely skipped updating when Namine got her distractors out. Yes, she no longer has distractors, and her plastic surgeon, Dr. Denny, proclaimed her jaw stronger than he expected. (He expected to have to leave one or both in place, at least for another month. Yay for us!) To fast forward a bit, Namine is doing well. The doctors seem ready to decanulate her (for the uninitiated, that means the trach can come out!) but as we have more surgeries soon, we opted to wait. Namine is scheduled to have her cleft palate repaired in June, and God only knows […]