Namine was born with a heart defect called double inlet left ventricle heart defect, or DILV for short. This means that the wall that separates the bottom two chambers of her heart is missing, and the top two chambers are flipped.
Namine has had three heart surgeries, two of them open-heart: the modified Norwood, the Glenn, and the fenestrated Fontan; and countless MRIs and echocardiograms. Her heart has adjusted well to the surgeries and allows her to participate in dance, baseball, and basketball.
Surgery Done, Recovery Begun
Namine completed her first heart surgery, a modified Norwood.
Jul 30, 2008
Namine completed her second heart surgery -- and first open heart surgery -- the Glenn procedure.
Jan 14, 2009
Cardiology appointment tomorrow
As we get closer to the Fontan, we have to learn the symptoms of low blood-oxygen levels.
Feb 24, 2011
On Friday Namine had her echocardiogram. Once again, like with Monday's ultrasound, Namine was afraid of the tech and having the echo done. But when she realized that this was painless, she was fine. She lay perfectly still for the entire thing, much to the tech's surprise.
Aug 29, 2011
This morning we took Namine to see her cardiologist. This was to see when she should have her heart cath, and to look to the future: the Fontan.
Feb 10, 2012
I think we are getting closer to her third heart surgery, but we may not be there yet. She had some appointments this morning. Jessica was going to come and eat lunch with me after the doctor stuff, but Namine said she was tired and wanted to go home and rest.
Mar 7, 2012
Heart appointment today
We met with Namine's cardiologist today. With Namine's O2 stats being lower since last weekend, our main concern was that the time for the third heart surgery, the Fontan, was drawing near. That's a train you don't want to miss.
May 11, 2013
Nearly every cardiology visit is filled with big and scary words. Tomorrow's word of the day is echocardiogram. (Am I supposed to put a hyphen or space in there somewhere? As a self-taught medical student - by necessity, you understand - I can never remember.)
Jun 6, 2013
Surgery drawing near
We consider the benefits of the Fontan now versus later.
Jun 10, 2013
Cath Before the Fontan
We're trying to schedule Namine's heart catheterization for the Fontan.
Jun 25, 2013
Namine had a heart catheterization in preparation for the Fontan.
Jul 2, 2013
The Fontan is done!
Namine completed her third heart surgery, a fenestrated Fontan procedure.
Aug 26, 2013
One drainage tube down
Namine had the first post-surgery drainage tube removed.
Aug 30, 2013
Namine has been here in the hospital since Monday, and we still don't have an idea of when she'll be able to go home. Despite having a CT scan, the doctors can't explain why the incision in her chest is opening up again.
Oct 2, 2013
Celebrating a healthy heart
Six months after completing the Fontan, Namine's heart is doing phenomenally well.
Feb 7, 2014
Nearly a year after completing the Fontan, Namine's doctor cut back her medication as a response to her healthy heart.
Jun 13, 2014
Namine had a follow-up to the Fontan procedure.
Dec 19, 2014
We met this morning with Namine's new heart doctor.
Jun 16, 2015
Remember the Holter monitor? Namine had to wear it for 24 hours.
Jul 3, 2015
One less med
Last week Namine had a cardiology appointment. It was just a routine check up.
Dec 29, 2015
MRI: now, we wait
We got up super early this morning in order to get to Children's Hospital for Namine's MRI.
Sep 8, 2016
Namine's fenestration might not be closed after all.
Jan 23, 2017
Today's cardiology appointment went very well.
Sep 10, 2018
We met with Namine's cardiologist to discuss some concerns.
Mar 11, 2019