·  Normal is a dryer setting.

pierre robin sequence

Jaw distraction on Dec 1

The post title says it all. As we said before, Namine’s jaw distraction would occur sometime last this year or early next year. But Jessica got a call today from Children’s Hospital that they would do Namine’s distraction on December 1 of this year. Needless to say (but I’m going to say it anyway), we’re…

Visiting the plastic surgeon

Today Jessica took Namine to see Dr. Denny, the plastic surgeon. After the results of the sleep study, CT scan, and bronchoscopy, he said that she’s a good candidate for having a jaw distraction. We know she’s doing well, but it’s still reassuring to hear a doctor say it. Namine will be scheduled for the…

Sunday school and volleyball

It’s been a full day. Kinda hard to believe that it’s already 4 in the pm, actually. The day flew by! This morning was the first Jesus Cares meeting of the season (school year? whatever). We were late, but that’s okay. Considering all the equipment we have, I’d say we’re a little entitled. ;) Of…

Bronchoscopy

Today, kids, Namine had her bronchoscopy. According to Wikipedia (since everything on the Internet must be true), a bronchoscopy is “a technique of visualizing the inside of the airways for diagnostic and therapeutic purposes.” Sounds good to me. The purpose of this, as it relates to The Feisty One, was to determine if she needs…

Tests, naps, and road trips, oh my

Welcome to our new virtual home on the interwebs, eichefam.net. Since is the new family website, this’ll be home to more than just Namine’s blog, but not to worry! Just click on Namine’s name under the categories there on the right. Or just go to eichefam.net/namine and you’re all set. I hope everybody enjoyed their holiday…

Finally:)

Sorry everyone for not posting more often.  It has been quite a hectic past couple of months.  Namine has been home since March and doing great.  We spent two days in the hospital for heart monitoring and they called it equipmentitis.  She has been stating in the low 90’s to even 100% O2 stats at…

Jaw Distraction

Hello to Everyone, Paul and I brought Namine in to see Dr. Denni this past Monday to find out when she will be able to have her jaw distraction done, so we can remove the trac and g-tube. It was mostly bad news but some good news. We have to ween her faster off of…

Holy Cow Where Has The Time Gone!

Hello everyone, I am so sorry that we have not been keeping up on this. It is has been a long and fantastic ride being home. We have celebrated our very first holiday home!!!! YAY!! We almost thought that we weren’t going to be able to. She came down with a viral infection the week…

Home On Monday!

Hello Everyone, Namine is coming home on Monday, February 2nd. Great Grandpa has a great birthday present:) Namine is doing well. She has recovered surprisingly well after having this heart surgery. She is down to 30% oxygen not only on the vent but on her trac collar and doing fabulous. She is stating in the…

Almost all tubes out. Also, pink!

So Namine’s trach was put back in, making her a much happier baby. Her chest drainage tubes were also removed; her left and right arterial lines were removed, but the one in her arm is still in. They also made sure that her new G-tube is in correctly before they start feeding her. They may…

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