Jessica and I were helping her sister move this weekend, so my aunt took Namine to basketball camp.
Things often don’t go as planned. This weekend was one of those things.
Nearly a year after completing the Fontan, Namine’s doctor cut back her medication as a response to her healthy heart.
We took Namine to the pediatrician. Yes, again. She still has a nasty-sounding cough — even after being on steroids to help with inflammation, antibiotic, increased inhalers, and a nebulizer — and the persistent bugger shows no sign of letting up.
We had an appointment today with the speech pathologist. (Yes, that one.) It went far better than I expected. In fact, we now have solid evidence that not only is Namine speaking better with the palatal prosthetic in, her speech is improved when she isn’t wearing it.
Despite all the fun we had over the weekend with Namine’s first dance recital, we had a scare on Friday. We had just gotten home from the dress rehearsal, and Namine wasn’t feeling well. So we took her pulseox, expecting her O2 to be in the low 80s; we were certainly not prepared for what…
This morning we took Namine to see her cardiologist. This was to see when she should have her heart cath, and to look to the future: the Fontan.
When Namine drops her sats, our immediate thought is that she’s getting sick. Well, she’s already sick, so it would be no surprise that her sats are down a little. But Namine was down to 81 this morning, and that’s frightening. To make matters worse, Namine woke up with the croup again.
On Friday Namine had her echocardiogram. Once again, like with Monday’s ultrasound, Namine was afraid of the tech and having the echo done. But when she realized that this was painless, she was fine. She lay perfectly still for the entire thing, much to the tech’s surprise.
I meant to update the other day with the results of Namine’s first IEP – not to be confused with a preliminary IEP – but we had to bring her into the ER. Things have calmed down a bit now, though, and I can finally catch you up.