·  Normal is a dryer setting.

hospital

CHW

Hello All, Namine was home for a record of 16 days this time. Paul and I brought her in Wednesday night with a fever, loose stools and mega suctioning. They did a bunch of tests and pumped her full of fluids and she still had a slight fever. Yesterday the doctors put her on isolation…

Has it really been nearly 2 weeks?

It’s still hard to believe we’re home. Namine is such a joy to have in the house – we’ve waited so long to have her all to ourselves. She’s almost always full of smiles, a couple nights ago being an exception, but anybody would be a little crabby with only 2 hours of sleep. But…

I can finally say it, HOME!

God has answered and is still answering all of our prayers. He has been working miracles from day one. He is with us no matter what. I started this blog off the way I did because the rumors are true, Yes all of you that is right, Namine came home on Monday. It has been…

Well What Can I Say.

Hello Family and Friends, Well it is a day that has come and gone. Namine was supposed to come a long time ago, but that day was pushed back for one reason or another. Then she was supposed to go home a different day that was pushed off for one reason or another. Then she…

We Hate Being Sick!!

Warm weather what have you done. You have made our allergies go bonkers, bonkers, bonkers so my poor husband is sicker than a dog. He aches and sneezes his ribs hurt from falling on the ice, our room is littered with Kleenex (oh wait he picked them up). Namine is stuck at CHW I hope…

SUNDAY!!!!!!

Sunday is the official day set by Doctor Gordon.  We hope that Namine can start to tolerate her feeds all day by today, or I don’t know what they plan on doing.  She did alright yesterday, but she did throw-up and we think it was just because her feeds are too close together.  They keep…

Not Home Yet

First off, my apologies. We’ve been a little lacking in updates, I know. We’ve been a little busy. Wednesday has come and gone, and Namine is not yet home. Monday night, Namine was not doing too well – she was throwing up frequently, and so the doctors were not comfortable sending her home the next…

Home On Monday!

Hello Everyone, Namine is coming home on Monday, February 2nd. Great Grandpa has a great birthday present:) Namine is doing well. She has recovered surprisingly well after having this heart surgery. She is down to 30% oxygen not only on the vent but on her trac collar and doing fabulous. She is stating in the…

Forth to the fourth

Hey everybody. Namine has been moved up to the 4th floor. This seemed like a pretty sudden thing, since Jessica got to the PICU room yesterday and they said, “hey, we’re moving her upstairs!” But actually, the doctors tell us that recovery time after the glen procedure is a lot shorter than it was after…

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