This morning a physical therapist came to the apartment to evaluate Namine. But this was no ordinary PT – if there is such a thing – this was a PT from the school district. She was there to examine Namine in order to determine what kind of therapy she might need when she starts attending school. Things like her preferred method of locomotion, level of toilet training, gross and fine motor skills, listening skills, and cognitive ability.
Tomorrow Jessica and I are going to be helping out our friend and neighbor Leah with the kids’ area at Polish Fest, down at the Summerfest grounds. We’ll be helping to set up the games and prizes, and assisting with running the games, crafts, and activities. This will be our second year helping out, and we’re really looking forward to it because we had a blast last year.
In following with the doctor’s permission to let Namine scoot around, scoot she did. And scoot, and scoot, and scoot. By bedtime, she was cranky – not so much because it was bedtime, I think, but because she was in pain. She is still in recovery, after all, and she still needs to take it easy. A little Motrin helped, and she fell asleep with relative ease.
I don’t imagine any of you who read Namine’s blog care for my tendency for long-windedness, so I’ll keep it short. Namine was allowed to come home on Saturday, which was a wonderful surprise. She still has needs medication for the pain, but she’s being quite a little trooper. She’s not allowed to move around until next week, so wish us luck in trying to keep her sitting still for a week.
If I had subtitles, it would probably be “The miracle that no doctor could have foreseen.” But I’ll get to that. I’m sitting in the parents’ lounge typing this up because I forgot my laptop. If I hadn’t, I would have posted much, much sooner, because pretty much all Namine is does is sleep. A much deserved sleep, I might add.
The nurse in the OR just called in to the waiting room to inform us that they finished the g-tube removal and fistula closure. She didn’t say exactly how it went, but we remain optimistic because it only took them about an hour and a half. And they got the IV in on the first try, which is also a good sign. Namine is an incredibly hard stick, and it usually takes two or three tries. I’ll post again once Namine’s hernia repair is done as well.
Namine has just been taken back into the operating room, so Jessica and I, along with Chyral and her boyfriend, have deposited ourselves into the waiting room. We expect to see more family before the day is out. (I was going to say “morning,” but it’s noon now.) We are told to expect about a three hour waiting period, but Dr. Arca will have a better idea once Namine is opened up so the hernia can be inspected at first hand.
A couple things might interfere with Namine’s scheduled surgery tomorrow, and for once, neither of them is sickness. Namine has remained pretty healthy – not even a cough or a sniffle – but complications at the hospital might make for a rescheduling or two.
It’s the kind of thing that, as a parent, you know in the back of your mind will eventually happen to you – but you still hope it never will. Of course Namine is more prone to, um, “blowouts” (picture me doing fingerquotes), because of her hernia and the intestinal blockages it causes. Then, without warning, the floodgates (poopgates?) open and everything comes out at once. (Hey, this is the unglamourous side of parenting, bud. You’re welcome to skip this post if bathroom talk makes you uneasy.)
We made the call today to general surgery, in order to get things in motion for Namine to have her next two surgeries: g-tube removal and hernia repair. Unfortunately, we have thus far been a little successful, only having spoken to a receptionist. We’re in no real rush, but we would like this scheduled as soon as possible. Wisconsin summer is short; we don’t want Namine stuck in the hospital when fall hits, that much is certain.