One crazy day

Today started, well, not like any other day, maybe, but more or less how we expected. Namine had another visit from someone from the school – this time, a psychologist – and from there she had a couple therapy sessions to attend. We also had a scare today, but everything is okay now.

Fighting infection

Yesterday afternoon, Jessica and I took Namine in to see the pediatrician. The particular doctor we saw had never met Namine before, but she seemed well enough acquainted with her file. (It’s about a foot thick. No surprise there, with everything she’s been through.) She listened to Namine’s heart and lungs, hooked her up to a pulseox (heart rate: 130-140, O2: 90-91), checked her ear tubes, and looked in her nose and mouth. Namine was, as always, well behaved and cooperative for the doctor.

High fever and a trip to the ER

Last night Namine had an incredible fever of 103.2. That was under the armpit, too, and we thought that was much too high for what the doctor had called just that afternoon “the tail end of a virus.” To us, it seemed like she was coming down with something else entirely. So we bundled up Namine and headed to the ER – me, Jessica, Namine, and my Aunt CR, who was visiting for the evening. I doubt it was as relaxing as she’d hoped the evening would be.

…It’s another

So Jessica took Namine to the pediatrician this afternoon. According to the doctor, Namine’s fever is the result of a virus. Again. I tell ya, the kid can’t get a break. As a result of the high fever, she doesn’t have much of an appetite. She’s crabby. She’s tired. It’s up to us to make sure she’s well-hydrated. Normally that wouldn’t be a problem; Namine loves water. Loves it. But when she’s feeling so ill, of course she wants nothing to do with anything. Except perhaps Elmo.

If it’s not one thing…

Last night Namine had a fever of 101.1. But that was taken under her armpit – she doesn’t quite yet get the whole idea of holding the thermometer under her tongue – and I’ve always been told that you should add a degree to an armpit temp. So make that 102.1. I gave her some Motrin right before bed (I usually do for her feet, anyway), and she fell asleep almost immediately.

Coughing fits, and a clinic visit

Yesterday was a pretty fun day. Jessica, Namine, and I went over to my mom’s house for lunch. My dad went out and got a sled for Namine, and he ran around the front yard with a bundled Namine in tow. (I would have loved to do the towing, but I was stricken with a ginormous migraine.) My mom did most of the picture-taking; I will upload a bunch as soon as I get them from her. But now, it seems, that all fun has passed and we are paying for it, with interest.

Taking a deep breath

Of all the things that we fear above all else, as parents of a post-trach child, is repiratory illness. Pneumonia can be deadly to any child, but if a post-trach child gets it, the most likely end result is a re-traching. (My spell checker is having fits at those sentences, but it also doesn’t think tracheostomy is a word, so to heck with what it thinks.) Namine has a slight cough; she has had it for a few days now, and we’re not sure what’s going on. It’s not common enough to take her in to the ER, but it raises its head often enough to remind us that it’s still there.