CHD awareness week
Let’s talk about CHD awareness.
Relaxation and cake
We made a cake a couple nights ago, but last night’s events prevented us from having any. We all had some this evening.
Keep your chin up
September 5 is Pierre Robin Sequence (PRS) Awareness Day!
Our ALS ice bucket challenge
It’s been more than the typical “24 hours to respond” since Jessica and I got our nominations to participate in the ice bucket challenge for ALS awareness, but here we are.
On donating to ALSA
For those of us who don’t support embryonic stem cell research.
Namine’s ALS ice bucket challenge
Namine was challenged by her friend Beanie from therapy to do the ALS awareness ice bucket challenge. Here’s her video.
Raising awareness for Pierre Robin Sequence
It’s been a while since I talked about anything other than staying in the hospital. We’ve been pretty busy, especially with the complications that have arisen from Namine’s heart surgery and all that entails.
The other day, I took Namine to McDonald’s, just the two of us out to a father-daughter lunch after a hard physical therapy session. Namine had worked hard, and despite being sick, made steps (ha ha) toward strengthening her legs. She deserved a treat.
Are you wearing purple today?
November is a month for awareness, the big one being breast cancer. Several of my Facebook friends have changed their pictures to have the pink breast cancer awareness ribbon; others have tinted theirs pink. November is also the month for prematurity awareness, and its color is purple. Premature birth is one of the major causes…