Namine

Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.

  • Post-Surgery, Again

    Be warned, I’ve written a book this evening. If you like text, feel free to plow on ahead. Hey, everybody. After being away from the computer for a couple days (but it feels much longer!), I have lotsa news of both my girls. First, Jessica is back home, after being in surgery yesterday and spending…

  • Extubation Today

    The last time I updated, I told you all how the doctors thought that Namine’s left diaphragm might be paralyzed. Well, they did a flouroscopy scan, which revealed that it is, in fact, paralyzed. To clarify, it’s not actually paralyzed, but it moves in the opposite direction. The doctors would actually prefer it not move…

  • Surgery

    Hello Family and Friends,Just to update you on everything that has happened within the past couple of days with myself. The C-Section incision opened up and was infected once, opened up even more and just packed and left to heal. Paul and I were told that if there is a lot of bleeding and puss…

  • New Week, New Worries

    So I’m back from visiting Namine. I have good news and bad news. The good news is that she’s doing really well. Her numbers all look really good. Her breast milk is still being fortified with soy-based formula, and she’s been off the lipids since around noon yesterday. She’s also doing most of the breathing…

  • Hello SOEL Families!

    Paul, Namine and I want to thank you for all of your thoughts, prayers, and comments on the blog. We haven’t forgotten about any of you, but wanted to just say thanks for everything you have done for us as we’re keeping you updated on the blog. Please feel free to write comments to keep…

  • Not Today

    Hello to you all,Namine was ready for her big day last week:( She was unable to be extabated today. She was running a slight fever and her heart rate was a little high. So they started her on antibiotics and gave her some more morphine, which delays extabation even longer. On Friday they started giving…

  • Extubation Tomorrow

    Hello again from Hospital Land!Bored? Highlight the page!Namine’s breathing tube was scheduled to be removed today (a process called extubation). Of course the doctors want her alert for this process, since its purpose is to see if she is able to breathe on her own. Toward this end, Namine was supposed to be cut off…

  • Post-Surgery

    I’m writing today’s journal entry longhand in Namine’s new room in the PICU (and typing it out much later). She’s all situated here, and the nurse tells me that the doctors are very pleased with her progress, such as it is – so soon after her surgery. Namine still has lines in her belly button,…

  • Surgery Done, Recovery Begun

    Namine completed her first heart surgery, a modified Norwood.

  • Here We Go Again

    Well, tomorrow’s the big day. Jess and I will be out of touch – online, at least – until after the surgery. See you on the other side.

  • Surgery

    Hello to Everyone,I am writing to tell all of you that they did the scope today and they found that the fistula is healing and it is about half the size it was last Tuesday. So the heart procedure is still scheduled for Tuesday of this week. It has been a very long past couple…

  • Surgery Moved to Tuesday

    I wrote on Wednesday that Namine’s heart surgery is rescheduled for this Monday; well, that changed today. The doctors moved it to Tuesday. So on Monday, they’ll still do the fiber optic scope to look at her throat (and how it’s healed). If she’s healed to their satisfaction, they’ll proceed with the heart surgery on…