Eiche fam

Namine

Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.

  • A good night

    Last night, Namine slept through her third trach-less, no-help-from-oxygen night, ever.

  • Sickness, scarfing, and scooting, oh my

    Namine is doing better and better every day, but she’s not quite 100% yet. She still needs oxygen while she sleeps, and she’s still coughing a little bit during the day. But she’s done with her Tobi meds and oral antibiotic, she’s coughing less, and what little she is coughing, she’s getting mucus out of…

  • Equipment failure

    At least, equipment malfunction. After last night, I’m convinced that’s what happened. Namine slept through the night, oxygen mask strapped securely over her face. The pulseox, on the other hand, beeped, booped, and otherwise alarmed for the better part of the night. Read on for more equipment woes.

  • We tire of the hospital

    Thankfully, we did not have to go to the hospital again tonight, but we almost did. During Namine’s afternoon nap, the pulseox reported O2 sats of 75 and under. Namine, being sick, should still be able to keep it above 80. If she doesn’t, we’re under doctor’s orders to call her pediatrician. Jessica did, and…

  • Good news and bad

    The good news, of course, is that Namine came home from the hospital yesterday.

  • Still in the hospital

    Namine will be in the hospital for at least tonight, maybe tomorrow night as well. She still has an infection, and she’s still coughing up mucus, though admittedly it’s not green mucus anymore. Her disposition has improved quite a bit, though she’s not quite her usual lively (and hungry) self. We’ll get there, though.

  • Namine’s stoma infection

    Namine is in the hospital again. Following on the heels of last night’s post (actually, it was probably early morning) is the news that Jessica and my mom took her into the ER this morning.

  • Respiratory distress

    We had our first trach-less scare, tonight. I have talked before about how Namine has always had intestinal troubles; well, tonight she was a whole lot of pain, trying to push something out. Couple that with dealing with her trach being gone, and you have a recipe for trouble. She’s sleeping soundly, if not a…

  • A sudden lack of trache

    A sudden lack of trache

    I’m happy to say that Namine is safely home, and she’s asleep in her own bed again.

  • Namine’s trach removal is tomorrow

    I don’t think I can get any more straightforward than that.

  • Appointment day

    Namine had an appointment today, a checkup visit with Dr. Denny, her plastic surgeon. (Why are they called plastic surgeons? They operate on people.) Just to make sure her jaw is doing okay, and all that lovely stuff. And tomorrow’s the big day! We check in at the hospital tomorrow at 10.

  • Music class

    My mom and dad picked Namine up to take her to some kind of music class this morning. I’ll update everybody on how it went later. In the meantime, Jess, her sister Chyral, and I are going to pick up the cake and go to the baby shower. We’ll all meet there and then I…