Chasing fireflies
When we were children, Jessica and I loved to chase and catch fireflies. Now Namine has gotten to do it too. ♿🔥🦋
Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
Pirate birthday party
Namine thought she was having a small birthday at her aunt’s house. We surprised her with a pirate-themed party! 🥳🎉⚓☠️
Moon gazing
We visited an observatory for a chance to see the moon up close. 🌙🔭
School is finished!
Namine has been home schooled since kindergarten. She has loved and hated being home. Being her mom and her teacher sometimes there are days where things don’t go as planned.
Little League parade
Namine participated in the annual Little League parade before the Brewers game. ♿
Tennis practice
Namine was very excited to start tennis practice again! ♿🎾
Baseball game
Namine had a wonderful time going back to baseball. ♿⚾
Fishing wish trip
Last month, Namine was invited to go on an all expenses paid fishing trip. She was thrilled to go, and although things didn’t quite turn out as planned, she still had a lot of fun. 🎣
Baseball jersey pickup
We picked up Namine’s baseball jersey today. 🧢⚾
Orthopedic appointment
Namine saw her orthopedic surgeon today. No news is good news, as they say, so today we have good news. 👨⚕️👍
