Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Tennis in the rain
The first tennis clinic happened in the midst of some less than pleasant weather.
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Breadsticks
Namine wanted to have breadsticks with dinner, so she found a recipe for us to make.
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Foiled again
Namine’s cough had a resurgence, causing us to miss baseball again.
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Therapy and storms
We had planned on going to Namine’s baseball game, but we ended up watching movies in the basement.
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Zipper shoes
Namine has settled on a pair of shoes she likes and likes to wear.
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Our accessible house
After more than a year of searching and countless viewings, we bought a house. And more importantly, it’s completely accessible.
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We all have Covid
What started out as a cold progressed to full-blown Covid for all three of us.
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Science is sick
What I meant was, “doing science while sick.” We broke out one of Namine’s science experiment kits. But that first thing, too.
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Memorial Day weekend sickies
Both Jessica and Namine were sick over Memorial Day weekend, but we still were able to enjoy ourselves.
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Beauty & the Beast ballet
We attended the Milwaukee Ballet’s performance of Beauty & the Beast!
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Pizza night
Homemade pizza is the best, and made better together.
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School picnic
We went to the end of the year picnic for Namine’s school.