Al’s Run
We had a great time running and walking in Briggs & Al’s Run!
Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
Decorating our shirts
We weren’t able to have a custom design printed on the backs of our shirts, so we made our own.
Voice-activated lights
I’ve connected a Raspberry Pi and a couple of smart plugs so Namine can turn on a light in her room which she previously could not.
Echocardiogram
Today’s cardiology appointment went very well.
Al’s Run t-shirts
We picked up our t-shirts for Al’s Run today!
Fixed scooter
Namine’s scooter is fixed!
Seven years ago today
I still can’t believe Namine is in fifth grade!
Fifth grade
I walked Namine to school for her first day of fifth grade.
Accepting help
Namine and I went on another wheel run together. We passed a parade, and I’m still processing how people treated us.
A closed door
A closed door is often a symbol for a limitation, an obstruction, or a barrier. Namine’s closed bedroom door is none of those things: it is independence.
