Since she’s homeschooled, Namine doesn’t have an IEP. But as we approach the time for her first state testing, we need to make sure certain accommodations can be met for her.
We love to see other kids’ stories about seeing Winter the dolphin.
Namine’s yearly appointment with her cranial-facial doctor was bittersweet; he’s retiring, so today we said goodbye.
It’s been a while since Namine has been to basketball practice.
Physical therapy is not fun. It’s hard work — tearful, painful work. Namine is a hard worker, but even she has her limits, so Jessica and I do what we can to make it enjoyable.
The dark underbelly of the special needs community is the dislike of the label of “special needs” itself. That, combined with the fact that many able-bodied people are writing and speaking for disabled people (both by professionals and caregivers), can be a recipe for disaster.
Losing the Affordable Care Act would be devastating. Without it, my daughter would most likely be dead.