·  Normal is a dryer setting.

Namine

Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.

Chasing fireflies

When we were children, Jessica and I loved to chase and catch fireflies. Now Namine has gotten to do it too. โ™ฟ๐Ÿ”ฅ๐Ÿฆ‹

Pirate birthday party

Namine thought she was having a small birthday at her aunt’s house. We surprised her with a pirate-themed party! ๐Ÿฅณ๐ŸŽ‰โš“โ˜ ๏ธ

School is finished!

Namine has been home schooled since kindergarten. She has loved and hated being home. Being her mom and her teacher sometimes there are days where things don’t go as planned.

Fishing wish trip

Last month, Namine was invited to go on an all expenses paid fishing trip. She was thrilled to go, and although things didn’t quite turn out as planned, she still had a lot of fun. ๐ŸŽฃ

Orthopedic appointment

Namine saw her orthopedic surgeon today. No news is good news, as they say, so today we have good news. ๐Ÿ‘จโ€โš•๏ธ๐Ÿ‘

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